I tested Covid positive recently, but this is not my story …

“Positive”. I was not surprised. I had started showing symptoms. So, one evening, while returning from work, I bought basics like an oximeter, a few specific medicines and isolated myself. The initial few days were tough, but the recovery phase was tougher. I experienced “collective grief”. The images and heart-breaking stories flashing on my TV screen and mobile feed were having a devastating effect on me. However, the comforting presence of Covid warriors who took to social media to help people desperately looking for hospitals, beds, oxygen, plasma, ventilators, medicines, or Remdisivir injections was extremely reassuring. Though I was in isolation in a city I had moved into just two years back, and did not have a solid support system in place, I was confident that if I needed help, it would arrive through social media

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Swati Subhedar

The date was April 13. It was 2 pm. The humidity was unbearable, and I was too tired to stand any longer. I looked around. Nearly 150 people waiting in the “Covid area” of a government facility in Mahanagar area of Lucknow, Uttar Pradesh, were getting restless. There were young children and many senior citizens, but there were no chairs or benches. All were wearing masks, but I could see fear, anxiety, and helplessness in their eyes. There was not much scope for social distancing, but somebody could have switched on the fans at least.

At 2:20 pm, a man wearing a PPE kit emerged. Another one behind him was carrying Covid test paraphernalia. Yet another man was carrying a very sarkari-looking microphone and a speaker. They disappeared into a small room. The man wearing the PPE kit opened a small window through which he would take the RT-PCR test samples. The man carrying test kits sat with a register. The man holding the microphone started calling out names.

One by one, people went to the window, got their test done, and went away. No questions were entertained. A few senior citizens requested the team to take their samples first, but they were sternly told to wait for their turn and that the names would be called out in the order in which Aadhaar numbers were registered. A notice informed us that we could log on to a Covid-specific government website the next day to know our test results.

Under normal circumstances, I would have gone to a private clinic, but as Corona cases had started spiralling in Lucknow in April, private labs succumbed under pressure. After making at least 10 calls to different private labs, I tried contacting a few paramedics who usually come home and take the samples. All the numbers were switched off. I then contacted Nikhil Sahu, a journalist, who works as a health reporter with a reputed newspaper in Lucknow. He suggested I go to this government facility as it was the closest to me. I did not know the procedure. He asked me to send him my Aadhaar details and he managed the rest. All I had to do was to go there for the test. The others did not have it this easy. One is supposed to physically go to the facility in the morning, register his/her name and Aadhaar number and return at 2 PM for the test.   

I could not have taken an Ola or an Uber, so I took my two-wheeler, followed directions on Google Map, and managed to reach the facility. The deserted roads augmented my anxiety. My mind was constantly buzzing with many “what ifs”. I shall be eternally grateful to Sahu for helping me out though we have met just once. After recovering, when I called to thank him, we talked about how April wreaked havoc on Lucknow, as it did in other cities.

“There was a sudden rise in the number of Covid cases in April first week. By the second week, nearly 5,000 people were testing positive daily. All the labs were functioning for 18 hours, yet thousands were not able to get the tests done,” said Sahu over the phone. He added: “Many healthcare workers had also tested positive, so private labs were closed. As per the government directives, nearly 50,000 tests had to be done, but only 25,000 were happening on the ground.”

Indians would like to erase April 2021 from their memories. People showing severe symptoms could not get themselves tested; more serious patients were not getting beds, ventilators, or oxygen. As per media reports, many were dying at home and the number of deaths revealed by the government was not in sync with the scenes at crematoriums across the country.

I was, like many others, so numb with grief that I consumed news like a maniac. After all, when you are isolating alone, your mobile and television are your only sources of contact with the outside world. In addition, there was a lot of Covid anxiety to deal with. In the initial days, I would wake up in the middle of the night to check my oxygen level and there were times when I felt completely helpless when the thermometer displayed “102”. One night, I dreamt that some strangers were taking me to a hospital in a blue body bag.  

Close friends living in India and abroad called and messaged regularly. “What’s the oxygen level” replaced “good morning” messages. Ex-colleagues and building-mates would send me numbers of oxygen suppliers and tiffin services and bought me groceries and medicines. Panicked family members did all they could sitting thousands of kms away. A special thanks to my landlord Subhash Pandey, 55, a Supreme Court advocate, who bought milk for me every day, and my landlady, Indu Pandey, who would call me twice a day to “entertain” me.

While I can write a book on all these kind souls, this story is not about them. This story is about those known and unknown people on social media who kept me reassured. The situation was so bad that I would often wonder whom I would approach if my oxygen level started dipping or if I needed hospitalization, or how will I help my parents who were in another city if they needed help.

I would read all the “SOS” and “Urgent Help Needed” messages on Twitter and Facebook just to understand how others were reaching out to those who needed help. When the system started crumbling, it was these ordinary men and women who put social media to good used and went out of their way to help others. As Sahu puts it very aptly: “Social media acted like one big pharmacy and a hospital. Oxygen, injections, medicines, beds, plasma, ambulances … everything was available here. People were turning to social media for help as they were getting help on these platforms.”

A Linkedin post by Kavita Pathak, Director, Jaipuria Institute of Management, posted in April is the perfect example of how strangers turned into angels. Here is the edited version of what she wrote:

“In the middle of the night, my 85-year-old father’s oxygen level started fluctuating. One oxygen cylinder reached my doorstep at 3 AM, dropped by someone whom I did not know. He was just a phone number. I got in touch with one Puja ji. One Abhishek ji who lives in Indira Nagar in Lucknow started from his place at 2:15 AM, went to Gomti Nagar where Puja ji lived, collected the oxygen cylinder and reached my place in Mahanagar area at 3 AM. Not a penny exchanged. He even called the next day to ask about my father.”

It was stories like these that kept Covid patients, and their families, hopeful amid so much gloom. People were not only tagging others who were in a position to help, they were going out of their way by personally calling oxygen suppliers and hospitals and sharing only verified numbers.

“It was a critical time and people were doing what they could do to help those who were scrambling to get beds and oxygen. We could not have miraculously built more hospitals or produced surplus oxygen, but people realized that they could help others by at least telling them where hospitals and oxygen were available,” said Mithilesh Dhar Dubey, a journalist based in Lucknow. He has been very active on social media right from the time when the second covid wave hit Uttar Pradesh and has managed to help nearly 50 people with beds, oxygen and Remdisivir injections.  

He shared a touching story with us.

“On April 21, at 10 pm, I got a call from a lady from Prayagraj. I am not sure where did she get my number from. She was crying and said her husband was Covid positive and unwell. She had managed to get him to the city 25 kms from where she was in an auto but was not getting any bed. She was seven months pregnant. I asked her to wait. Then through my sources and online resources, I found out that one hospital in Prayagraj had seven beds with oxygen cylinders. I called the hospital and confirmed. I then asked the lady to go there. There she was asked for a letter from the Chief Medical Officer, which she did not have. So, I called the District Magistrate of Prayagraj. Her husband finally got a bed. His oxygen level improved from 70 to 95. She called me the next day, thanked me and said if she has a boy, she will name him Mithilesh.”

As the number of Covid cases started spiralling across India, so did the number of posts on social media. People did not waste crucial time blaming the system or cribbing about the failed healthcare facilities. They started tagging random people who they thought were in a position to help Covid patients and their families. And these tags were not city or state-specific. Such was the power of social media that a person sitting in Mumbai could, indirectly, or through other people, help someone in need in Delhi, Jaipur or Ahmedabad.

“This is how it worked. When help was sought by someone on social media, people would randomly tag other people. Sensing the urgency, these people would do all in their capacity to help the person on their own or they would rope in more people. The entire chain would work tirelessly until the person in need got help. What was most touching was that not everyone knew everyone in this chain,” said Gaurav Girija Shukla, who lives in Raipur, Chhattisgarh, and owns a PR and brand management firm. Shukla, and others like him have, so far, through a WhatsApp group, helped more than 250 covid patients recuperating at home by providing them timely help in the form of consultation, medication or hospitalization with the help of a panel of doctors, few volunteers and 2-3 helpline executives.

Talking about how the power of social media transcended state boundaries, Shukla narrated an incident.

“One day, at around 8 pm, I got a call from a friend of mine living in Raipur. His friend had landed in Jabalpur (Madhya Pradesh) earlier that day from Bangalore where his brother had just moved in only to realize that his brother and his entire family were Covid positive. The brother needed hospitalization as his oxygen level was constantly dipping, but the friend did not know Jabalpur. Without wasting any moment, a bunch of us in Raipur jumped in to help. We contacted a few journalists, influencers, politicians and NGOs in Jabalpur. By 11 pm, his brother got a bed in a good hospital.”   

However, the journey was emotionally and logistically draining for these social media worriers. Twitter accounts of those who were incessantly helping people by tagging others were suspended temporarily. Some Facebook users who were trying to help received a warning. In addition, some state governments came down heavily on people who were seeking help for medical assistance of oxygen supplies for their families or friends for spreading misinformation. On April 28, a man was charged in Uttar Pradesh over oxygen SOS on Twitter for his dying grandfather.

However, on April 30, the Supreme Court warned state governments against doing so. In a strongly-worded statement, the Apex court said: “Let a strong message go across to all states that we will consider it a contempt of this court if any citizen is harassed for making a plea on social media/media for making an appeal for oxygen/beds etc. Clampdown on information contrary to basic precepts. No state can clampdown on information.”

These restrictions have not stopped people from helping each other. However, fatigue has set in. People feel anxious and frustrated when they are not able to help anyone.

Last year, Daya Sagar, a journalist based in Lucknow, helped migrant labourers who were walking back home by providing them with cooked food, milk and water, and daily wagers with dry ration. “As a journalist, I couldn’t have just covered these stories. I had to help those people. By doing so I got in touch with a lot of people, communities, and groups on social media. So, this year, when people needed medical help, these networks enabled me to immediately start helping people. It is hugely satisfying when I manage to help people, but some days are frustrating,” he said.

In May first week, he wrote a Facebook post saying: “Now I don’t feel like giving false promises to people. I have exhausted most of my ground resources, but people are still not getting beds or ventilators. At times, even after dialling 10 numbers, we do not get a positive response from doctors. Even plasma donors are difficult to find. In cities like Delhi or Mumbai people are aware, so they help. But in smaller towns, people are still not thinking beyond themselves. It has become exhausting. Now, if I am not able to help someone, by evening I start feeling guilty.”

Sahu’s quote sums up this feeling. “I tried to help as many people as I could. But there were times when people died because I could not help them. I feel especially terrible when I am not able to help young patients. On such days, I sit in my room and cry,” he said.